Honoring Our Sweet Survivors
Giving to Others In The Fighting
Jonell Deshotel
OCCUPATION
Patient Advocate
VOLUNTEER WORK
Oversees non-profit 'The Roots of Music' parent association (Present)
Volunteer Administrator for National Federation of the Blind. (Past)
ACCOMPLISHMENTS/AWARDS
Serves as a Breast Cancer angel lead representative for TigerLily Foundation.
Serves as a student representative for accreditation board and interview committee at Southern University New Orleans.
Obtained a Certified Employment Support Professional certification in 2019.
Graduate of the Walt Disney World College Program (Orlando, Florida).
A LITTLE ABOUT YOUR BREAST CANCER JOURNEY
In November 2020, I discovered my own lump via self examination. In December 2020, I was officially diagnosed with Triple Negative Invasive Ductal Carcinoma. Underwent 16 rounds of chemotherapy, 17 rounds of immuno-therapy, and a Double Mastectomy with immediate reconstruction.
WORDS OF ENCOURAGEMENT FOR OTHERS
Cancer is only a chapter of our lives. I am a firm believer that God chooses his strongest soldiers for battle. Yes, this is a club that none of us choose to be a part of. However, it allows us to gain a new found understanding for ourselves. Cancer challenges us to think beyond what makes us comfortable. Some days will be harder than others. Taking one minute at a time is the trick!
PHRASE/QUOTE THAT HAS SIGNIFICANT MEANING DURING YOUR JOURNEY.:
‘Defeat is not an option'
ONE TO THREE WORDS THAT DESCRIBE YOU:
Honest. Resilient. Witty.
HOW DID YOU FEEL WHEN YOU LEARNED ABOUT YOUR DIAGNOSIS?:
At peace. Honestly, when I received my diagnosis...it confirmed what I already knew. Of course, I would always speak against it. However, I was already starting to program myself mentally for the battle as soon as I discovered my lump.
WHY DID YOU FIGHT?
I consider myself a Legacy Warrior. My Mother's cancer journey lasted for 14 years. Unfortunately, she "won" her battle to Inflammatory Breast Cancer in 2014. She is the strongest person I have ever known. She fought wholeheartedly until the very in. I fought to uphold her legacy. It was the utmost honor being her daughter and I will do all that I can to make my guardian angel proud.
THE KINDEST THING SOMEONE DID FOR YOU?
My friend group (also known as my village) dropped everything in their own lives to rally around me throughout my journey. I am forever grateful for their support, time, effort, and love.
Amelia Finley Leonardi
OCCUPATION
Retired Physical Therapist and Professor at Delgado Community College
VOLUNTEER WORK
Cancer Association of Louisiana & Breastoration: Board Member since 2005; current Board President
American Physical Therapy Association, Louisiana: Legislative Key Contact; PT
PAC ambassador; past board member, nominations committee chair & District Chair West Riverside Area Patrol: Board President
First Baptist Church New Orleans: member finance committee; Foundation Board Member; children's choir teacher; percussionist with orchestra
Global Maritime Mission: Board Member since 2015; served on Finance Committee & Personnel Committee
ACCOMPLISHMENTS/AWARDS
Hall of Fame Award, American Physical Therapy Association, Louisiana, 2021
Applied for & received Grants for Cancer Association with Baptist Community Ministries (BCM); 2019-2023
Excellence in Teaching Award Nominee, Allied Health Division, Delgado
Community College, 2020, 2019, 2018
Endowed Professor, Delgado Community College, 2013-2014 and 2008-2009
Dave Warner Distinguished Service Award, American Physical Therapy Association, Louisiana, 2009.
Delegate, American Physical Therapy Association (APTA) House of Delegates, 2014, 2013, 2010, 2009, 2008, 2001-2004, Alternate delegate, 2007
A LITTLE ABOUT YOUR BREAST CANCER JOURNEY
I was diagnosed with Stage II breast cancer at age 36. Needless to say it was a shock, especially since there was no history in my family. I had a left mastectomy (Dr. Alan Stolier) & breast reconstruction (Dr. Robert Allen). This was in early 1992 just before Dr. Allen pioneered the DIEP. Therefore, I had a TRAM procedure, which meant taking some of my abdominal muscle, which later caused some pelvic and back problems. I had an aggressive cancer, with ten lymph nodes positive for cancer. After a full year of aggressive chemotherapy, radiation, continued hormone therapy and lots of prayers, I was cancer free! My left arm remains swollen (lymphedema), a complication caused by the surgical removal of most of the lymph nodes in my axilla. I have had several serious infections due to the reduced function of my lymphatic system and had to receive IV antibiotics. I continue to receive specialized treatment by an occupational therapist every few weeks for maintenance, as well as wear a compression garment.
WORDS OF ENCOURAGEMENT FOR OTHERS
Keep the faith! When you are diagnosed with cancer and going through treatment, it seems that this ordeal will never be over. But, there is light at the end of the tunnel! It is certainly normal to feel sad, depressed and overwhelmed at times, so allow yourself these feelings without feeling guilty. But reach out for and accept love and support from others and try to adopt a positive attitude as much as you can.
PHRASE/QUOTE THAT HAS SIGNIFICANT MEANING DURING YOUR JOURNEY.
A chorus we were singing in choir at my church at the time: "Be strong in the Lord."
ONE TO THREE WORDS THAT DESCRIBE YOU
Fun-loving, compassionate, caring
HOW DID YOU FEEL WHEN YOU LEARNED ABOUT YOUR DIAGNOSIS?
Initially I was shocked, as I was only 36 years old and felt sure this was only fibrocystic disease due to dense breasts. I remember right after Dr. Stolier left my treatment room I said to myself, "I am going to meet my Maker." However, I had amazing wonderful support by my fiance', family and friends. As time went on, I was able to remain somewhat positive, which I do believe helped my outcome.
WHY DID YOU FIGHT?
I fought because I wanted to live! I had too much of life left to live to leave this earth yet!
THE KINDEST THING SOMEONE DID FOR YOU?
This is honestly too difficult for me to answer! There were just SO many people who gave me wonderful support---family and friends in town and visiting from out of state to help me; friends bringing food, giving me rides to treatment, etc. If I am forced to say one thing, I would have to say its my mother who traveled to spend six weeks with me after surgery.
Mary Franco
OCCUPATION
Volunteer at Hendrick Cancer Center
VOLUNTEER WORK
Hendrick Cancer Center, Pink Cap Warriors on the Move, Sacred Heart Catholic Church
ACCOMPLISHMENTS/AWARDS
Single mom of four amazing children, Breast cancer survivor, I have overcome my fear of public speaking and have spoken in front of crowds of thousands. I have persevered in the face of adversity during times I thought it would be nearly impossible.
A LITTLE ABOUT YOUR BREAST CANCER JOURNEY
I am a survivor of triple negative breast cancer. Although there were moments where I thought I might not be strong enough, with the help of my children and my fiance and my parents I was able to persevere. It was the single most difficult journey of My Life. I would not wish it upon my worst enemy, and I will do everything I know how to do to encourage and support those who fight this battle.
WORDS OF ENCOURAGEMENT FOR OTHERS
Be brave. Never lose hope. Pray always. Choose happiness. And above all, trust that nothing but good things are ahead of you. You are worthy. You are strong. You are a champion! Never give up! Never surrender!
PHRASE/QUOTE THAT HAS SIGNIFICANT MEANING DURING YOUR JOURNEY
Through God all things are possible.
ONE TO THREE WORDS THAT DESCRIBE YOU
Sweet and spicy, a fighter, and beautiful.
HOW DID YOU FEEL WHEN YOU LEARNED ABOUT YOUR DIAGNOSIS?
At first it didn't feel real. Until I started losing my hair during the chemo. I felt scared as if I was going to die.
WHY DID YOU FIGHT?
Parents because I have four beautiful children, my parents and my fiance that I'm not ready to leave behind. And the Lord isn't ready for me yet.
THE KINDEST THING SOMEONE DID FOR YOU?
They stayed with me and supported me through my cancer journey.
Camey Grau
OCCUPATION
Licensed Professional Counselor
VOLUNTEER WORK
Susan G. Komen Race for the Cure, 2003-2010
Susan G. Komen 3 - Day for the Cure 2010,2011,2012,2013
Producer for community theatre - 2015-2018
St. Pius X Women’s Club Board 2017-2019
St. Pius X Women’s President 2019-2020
You Night - Spark Program Leader
ACCOMPLISHMENTS/AWARDS
You Night class of 2021-2022
Order of St. Louis Service Award 2021
CLG Counseling, LLC - owner
Breast Cancer Ambassador - Guinness Book of World Records winner for most models on a runway.
A LITTLE ABOUT YOUR BREAST CANCER JOURNEY
My journey has always been a matter of when, not if. I am a 4th generation warrior. I have watched the women in my family fight this disease so valiantly and I knew my day would come. As much as you watch what happens to your friends and loved ones, it is your own experience that changes everything. My journey has been filled with twists and turns, roadblocks and deadends, potholes and speed bumps. Cancer has changed me and I have the battle wounds to prove it. With that change comes a decision. I chose to be a Survivor. There is always light even when you feel everything is dark. You have to search for it, even if it leads you off the path. That spark of light, is hope, and it leads to one of the greatest gifts : Gratitude.
WORDS OF ENCOURAGEMENT FOR OTHERS
Cancer is life changing. I am forever grateful for my amazing team of doctors, Dr. Trey Sands, Dr. Carin Sanchez, Dr. Alford Colfry and Dr. George Zacharia. They have treated me with such kindness and compassion. A cancer diagnosis is overwhelming and scary. Treatment and recovery is difficult, but there is always that spark of light, that brings you comfort, encouragement and Hope, search for it, it’s there.
PHRASE/QUOTE THAT HAS SIGNIFICANT MEANING DURING YOUR JOURNEY.
“Gratitude changes everything.” Everyday, I am able to wake up and live my life and continue to help others is a gift. There is no greater gift than what faith, hope and love gives to you and those around you.
ONE TO THREE WORDS THAT DESCRIBE YOU
Courageous, empathetic and generous
HOW DID YOU FEEL WHEN YOU LEARNED ABOUT YOUR DIAGNOSIS?
I knew before I walked into the building. Because I saw my mom’s Dr’s car in the parking lot. I knew if she was there, it was not a good result. I was not suprised, but I was angry, not at the diagnosis, but at the radiologist who told me that it was nothing and he was so confident it was not cancer. In that moment, I immediately went into what’s next and I certainly did NOT want to hear another word from his nurse or him. My mind immediately went into overdrive, making Dr’s appointments, doing what I could to get things in order before surgery. My anxiety was through the roof. I knew I could only control what was within my control and that turned out to be very little. Telling my children and family was probably the most difficult. I knew I had a host of angels watching over me and I leaned deeply into my faith to guide me.
WHY DID YOU FIGHT?
There was NEVER a doubt that I wouldn’t fight. Not fighting was never an option, it’s not who I am. My husband calls me the bulldog, knowing I have no problem saying what needs to be said and doing what needs to be done. I may have had cancer, but I’ve never allowed cancer to have me! I am an advocate by nature and I have supported others in their battles, telling them to never give up hope. I was never going to give up hope. The fuel that fired my fight, came from Dr. Colfry who validated my decision to be aggressive. He told me, “you saved your life, this would have continued to come back.” I know my time is not done yet so I keep fighting.
THE KINDEST THING SOMEONE DID FOR YOU?
I was blessed to have meals delivered, help with my children and so many who prayed for me. I think the kindest gestures came from my children who were so present for me and to my husband who cared for me after my surgeries, playing Dr and nurse showing love in the most sincere way.
Kristyn Kemp
OCCUPATION
Analyst
VOLUNTEER WORK
Cancer Association of Louisiana – Tour de Lis, Breastoration, Galatoire’s Goes Pink
You Night Empowering Events – New Orleans Program Director
The Pillar Group – Founder and leader of a monthly support group for female cancer survivors
Lakewood Oaks Garden Club - Secretary
ACCOMPLISHMENTS/AWARDS
Beating cancer. Raising a family. Being a committed wife.
A LITTLE ABOUT YOUR BREAST CANCER JOURNEY
People comment how they wish they were brave enough to cut their hair short or how strong I am for battling cancer twice but really, I feel like I did what I had to do.
I was diagnosed with triple negative breast cancer at the age of 37 when I had a 15 yr old stepdaughter and an 18 month old son. I was enjoying life and to say I was shocked is an understatement. Luckily, I was able to take a break from work and my mom was able to be here to help with everything since my husband is a New Orleans Fire Fighter and away from home every 3rd day. My treatment included chemo and a bilateral mastectomy with immediate reconstruction. I was back at work for about 3 months when I was told I had a recurrence and would need to do chemo, radiation and have additional surgeries.
Being 10 years cancer free has me far enough removed from the challenges of a cancer diagnosis and treatments that I can now see the positive side. I was able to be home with my son and spend time with him that I wouldn’t have had if I didn’t have cancer. I always said yes to things like makeovers, opportunities to speak about cancer and participate in programs such as You Night Empowering Events, walk in cancer survivor runway shows and to do anything to bring awareness to cancer survivorship. Now when I hear that someone has cancer I reach out and offer my support because I know it’s a big scary thing and hearing from someone who has “been there and done that” can make the difference in someone else’s journey.
WORDS OF ENCOURAGEMENT FOR OTHERS
Remember that you are not alone and don’t have to fight this on your own. There’s nothing to be ashamed of and the more you talk about your experience, the more you will feel supported and be able to support others.
PHRASE/QUOTE THAT HAS SIGNIFICANT MEANING DURING YOUR JOURNEY.
Get it checked. Because of an early diagnosis with both of my cancers we were able to treat the cancer and I am thriving as a survivor.
ONE TO THREE WORDS THAT DESCRIBE YOU
Loving, fun, encouraging
HOW DID YOU FEEL WHEN YOU LEARNED ABOUT YOUR DIAGNOSIS?
I received my diagnosis on the day I was set to travel to Houston for work. I decided I’d be fine and could still go. While I was there the diagnosis finally hit me and I called my husband to tell him I couldn’t quit crying. My husband was my rock, or as I liked to say my stabilizer. He kept me grounded and encouraged me to try to remain positive. Ultimately, I think it was good that I was alone so I could let my guard down. With my recurrence I remember thinking, how can someone get cancer twice and live? But that is what I did!
WHY DID YOU FIGHT?
To be here for my son and family.
THE KINDEST THING SOMEONE DID FOR YOU?
The outpouring of love that I felt throughout my entire cancer journey was so encouraging. My church delivered dinner every Wednesday night and dropped off a wheelchair so I could enjoy Mardi Gras parades. Friends came to visit and “take care of me.” One friend donated miles so my mom could come stay with us. The biggest shock was when I visited friends in Portland, Oregon and thought I was meeting some of them for dinner. It turns out they had secretly put together a fundraiser for me and completely shocked me!
Ashley O'Bryan
OCCUPATION
Social Media Manager
VOLUNTEER WORK
I am very lucky to be able to volunteer with local nonprofits through my work. I have volunteered at events such as golf tournaments, Hogs for the Cause, and the Zurich Classic.
ACCOMPLISHMENTS/AWARDS
I was a 2022 Fidelity Bank’s Chairman’s Core Value nominee but I feel my greatest award is being able to still be there for my children and family.
A LITTLE ABOUT YOUR BREAST CANCER JOURNEY
I had just gotten into my second trimester of pregnancy with twins, when I noticed a painful lump in my right breast. I always suffered with fibrocystic breast and would experience pains in my breasts due to cyst clusters. At a six month follow up mammogram with ultrasound I discovered, while 19 weeks pregnant, that it was not just a new cyst that developed in my right breast but cancer.
After being fast tracked with doctors’ appointments and bloodwork it was confirmed that I had stage 2 triple-negative breast cancer.
Although I did not know what to expect, my great team of doctors at Touro worked out a chemo schedule that would help me fight my cancer while remaining safe for my twins. During my treatment phase my twins and I were monitored very closely. A plan was made to deliver my twins early, since Taxol treatments would not be as safe for them. My twins and I made it through three rounds of A/C chemo together. Before finishing my last A/C treatment, I went on break from chemo for a month to be able to gain strength for my scheduled c-section. Our twins were born healthy at 33 weeks and are now 3yrs old.
I love sharing my story to bring awareness of women fighting breast cancer while pregnant and/or women battling triple-negative breast cancer. Approximately 1 in 1,000 pregnancies are affected by cancer, with breast cancer being one of the most common. Triple-negative breast cancer is also rare and affects about 13 in 100,000 women each year and accounts for about 10-15% of all breast cancers. With the odds stacked against me, you just never know who may need to hear a story of hope.
WORDS OF ENCOURAGEMENT FOR OTHERS
Life will give us all challenges and may not go as planned but it’s your attitude that determines how it can turn out.
PHRASE/QUOTE THAT HAS SIGNIFICANT MEANING DURING YOUR JOURNEY.
I’m not sure of a phase or quote but the one thing that has helped me the most is to take things one day at a time.
ONE TO THREE WORDS THAT DESCRIBE YOU
Fun Loving, Creative and Upbeat
HOW DID YOU FEEL WHEN YOU LEARNED ABOUT YOUR DIAGNOSIS?
I was beyond devastated. My husband and I had to go through fertility treatments for us to grow our family. My diagnoses for a while left me disconnected and took the joy out of my pregnancy. I also suffered with being mentally there for my then 3yr old.
WHY DID YOU FIGHT?
I not only fought for the lives of my twins but my oldest daughter as well. I wanted to show her that her mom was strong and to teach her to be brave when things seem scary and difficult.
THE KINDEST THING SOMEONE DID FOR YOU?
I have been truly blessed with a wonderful and supportive family as well a great group of friends. They were always there for me organizing meal trains and babysitting schedules so that I could get rest and just being there to listen. I couldn’t have asked for anything more.
Holly McCollum
OCCUPATION
Strategic Media Planning and Buying
VOLUNTEER WORK
Southeast Louisiana Council/BSA: Council President (November 2022 to present); Executive Vice President (2021 - 2022); Vice President/Marketing (2015 - 2020); Executive Board member since 2014
St. Martin's Episcopal Church: Senior Warden (2013 - 2014); board member (2011 - 2014)
GNO Inc/NORLI Board (New Orleans Regional Leadership Institute): Board member, 2010 - 2014
ACCOMPLISHMENTS/AWARDS
*Media Buying in a Post-Katrina New Orleans - White Paper published nationally by American Association of Advertising Agencies (AAAA) in January, 2006
*Advertising Club of New Orleans Media Person of the Year (twice)
*Quoted extensively in marketing and advertising publications such as Ad Week, Media Week, Media post and Direct Magazine
*Awarded the BSA District Award of Merit, the BSA Silver Beaver Award, 2021 Southeast Louisiana Council/BSA Above & Beyond Service Recognition Award
*First female Council President in Southeast Louisiana Council's 99 year history
A LITTLE ABOUT YOUR BREAST CANCER JOURNEY
Cancer touched everyone in my immediate family. My mother had breast cancer 3 years before I did. My sister was diagnosed with breast cancer 3 weeks before I was in late 2013. We each had the same diagnosis, treatment and follow up, even though we were in 3 different states. Breast cancer struck all 3 of us on the right side. My father had prostate cancer over 20 years ago. This universality made all of us acutely aware of what we eat and how we take care of ourselves. It also fostered a sense of gratitude for being alive, and a strong desire to never take our health for granted. And to share our experiences in hopes of positively affecting those around us.
WORDS OF ENCOURAGEMENT FOR OTHERS
Having cancer is overwhelming. People can look at you differently after a diagnosis – almost as if they are scared it’s “catching” by being near you. It’s nice to have someone to talk with about regular things or who will check in without the need for a response. Find a "mentor" who can look in on you, virtually or literally, who you can really be yourself with. Share your fears, your hopes, your concerns. Just having someone to listen can often make the situation less scary.
PHRASE/QUOTE THAT HAS SIGNIFICANT MEANING DURING YOUR JOURNEY
This is not about my comfort - it is about my character.
ONE TO THREE WORDS THAT DESCRIBE YOU
Determined, Creative, Loyal
HOW DID YOU FEEL WHEN YOU LEARNED ABOUT YOUR DIAGNOSIS?
Of course, I felt overwhelmed. I like to know the process for everything, and cancer takes away your control. I was scared of how the treatment would make me feel. I was afraid the cancer could come back. The anticipation of surgery and radiation turned out to be way worse than the actual experience.
WHY DID YOU FIGHT?
I have an amazing husband and our son was 14 years old at the time. I own my own business and was involved in several meaningful volunteer activities. I never considered not fighting.
THE KINDEST THING SOMEONE DID FOR YOU?
My sister and I weren't the closest of siblings growing up. When my sister called me to say she'd been diagnosed with cancer, that made me go get a mammogram. She was exactly 3 weeks ahead of me for surgery and for radiation treatments. She called me almost every other day to check in and give me the roadmap for what to expect. She was the protective big sister paving the way for me and making my journey easier. It made us incredibly close, for which I am still so grateful.
Gina Pausina-Cherry
OCCUPATION
Educator, Etiquette Instructor, Certified Group Fitness Instructor, President/CEO/Choreographer of Bionic Babes Dancers of Hope, Independent Stylist for Ruby Ribbon Shapewear - Bye Bye Bra
VOLUNTEER WORK
Served on numerous school parent committee's, social events chair and executive boards for over 25 years.
Served as the chair person for small business with the St. Tammany Chamber of Commerce
Volunteered at numerous cancer events throughout the community for the last 6 years.
ACCOMPLISHMENTS/AWARDS
Founded the first ever dance team and support group for cancer survivors, medical professionals of oncology, caretakers and supporters. As the President and CEO of the non profit, 501(c)3, I am proud to say the team has just completed an unforgettable first year of guest appearances and performances with a whole lot of fun. Our mission is to inspire others to live life to the fullest and don't let a cancer diagnosis define you.
A LITTLE ABOUT YOUR BREAST CANCER JOURNEY
It was truly devastating with the news that I had breast cancer but finding out only 5 months before my wedding was to take place was even more upsetting. I was diagnosed in June 2017 with stage 2 triple negative breast cancer with the BRCA 1 gene. After carefully interviewing several surgeons and oncologists to ensure optimum treatment, I selected the doctors who I felt would take the very best care of me. I was extremely frustrated that for the first time in my life I was not going to be in control of my physical feminine body. I began treatment immediately, intravenously. I decided to concentrated on what I could control. I kept my mind occupied on rescheduling my wedding and making it happen within a six week period than dwelling on the cancer. I think it was my Mom (passed away from ovarian cancer in 2012) working from above and God's Divine Intervention that I was able to secure August 5th and get married as planned. I have a very strong faith and I know someone upstairs definitely had my best interest at hand and He is not going to let me down. With two rounds of intravenous chemotherapy administered before the wedding and an adjusted treatment plan, I was fortunately able to look and feel like myself for the wedding. Throughout my journey, I am fortunate that I had my fitness classes and children to keep me going and showing up for them. I was not going to let this cancer stop me from living. It definitely derailed my life for an entire year but I was determined to get back into the driver's seat and control what I could as soon as possible.
WORDS OF ENCOURAGEMENT FOR OTHERS
Be your own advocate of your health and listen to your body. Listen to the so-called 6th sense, intuition or gut feelings. If you feel strongly about something, ask the questions. I strongly suggest having some type of exercise regimen. A body in motion stays in motion. Any form of exercise or dance will help the mind and body to stay positive and relieve stress and pain. Let go of the inevitable that you cannot control and concentrate on what you can. Try to make the best out of the worst. Make it fun and be creative. For example: I matched my beanies to my wardrobe so I still felt fashionable and then rocked big earrings. Lastly, ask for help. You can’t do this journey alone and there is light at the end of the tunnel.
PHRASE/QUOTE THAT HAS SIGNIFICANT MEANING DURING YOUR JOURNEY
Stay positive and never give up!
ONE TO THREE WORDS THAT DESCRIBE YOU
Energetic, Driven, Nurturing
WORDS OF ENCOURAGEMENT FOR OTHERS
Be your own advocate of your health and listen to your body. Listen to the so-called 6th sense, intuition or gut feelings. If you feel strongly about something, ask the questions. I strongly suggest having some type of exercise regimen. A body in motion stays in motion. Any form of exercise or dance will help the mind and body to stay positive and relieve stress and pain. Let go of the inevitable that you cannot control and concentrate on what you can. Try to make the best out of the worst. Make it fun and be creative. For example: I matched my beanies to my wardrobe so I still felt fashionable and then rocked big earrings. Lastly, ask for help. You can’t do this journey alone and there is light at the end of the tunnel.
HOW DID YOU FEEL WHEN YOU LEARNED ABOUT YOUR DIAGNOSIS?
Devastated and thinking this can't be real and happening to me at this time in my life! I've been through many challenges of illness in my young adult life (meningitis & comma state at 2.5 years young, seizures at the age of 10, Eales Disease at the age of 13 which was hemorrhaging of the retina & vision extremely distorted to 50% blind) and thought I was done with that awful roller coaster ride. But only yet to now have breast cancer at the age of 49.
THE KINDEST THING SOMEONE DID FOR YOU?
The kindest thing someone did for me was showing up, listening and giving of their time. A dear friend of mine came over to my house as soon as I found out the news of the diagnosis. Not knowing she was driving to my house as I was sobbing on the phone with her of what was happening. Also I must say, the close friends and my finance' that would come sit with me a chemotherapy so I didn't need to be by myself. So blessed for having them in my life!
Nancy Pesses
OCCUPATION
Relief Veterinarian, Challah Baker
VOLUNTEER WORK
• Community Host for monthly virtual meetups – The Breasties
• Board Member – National Council of Jewish Women Greater New Orleans Section
• Peer Support volunteer – Sharsheret
• Patient Advocacy Committee member – Community Breast Reconstruction Alliance
ACCOMPLISHMENTS/AWARDS
• Certificate of Merit for Excellence in Clinical Oncology, LSU School of Veterinary Medicine 2017
A LITTLE ABOUT YOUR BREAST CANCER JOURNEY
I grew up around and knew the deep ripples ovarian (and to a smaller extent breast) cancer left on both sides of my family. I am of Ashkenazi Jewish descent, and this ancestry carries a 10-fold increased chance of carrying a BRCA mutation compared to the general population. Once I finished multiple years of postgrad internships in veterinary oncology, I decided to get tested for hereditary cancer mutations through my gynecologist. I found out in February 2021 that I carry a BRCA 1 mutation, however it didn’t quite sink in until I went to the first of many doctors’ appointments. There, my breast surgical oncologist told me I had up to an 80% chance of getting breast cancer & up to a 50% chance of ovarian cancer. It only took me going through one round of increased surveillance measures (3D mammogram and breast MRI, typically done on patients like me twice yearly to catch anything early), that I knew I wanted to take risk reducing measures to lessen the feeling of being a ticking time bomb just waiting for breast cancer to develop.
There is also a very real mental impact to being a previvor, as having such vital knowledge about your genetics makes you inherently weigh the risks of screening vs surgical measures on one’s potential future cancer risks. For me, my ‘scanxiety’, or anxiety revolving around my increased screening measures potentially finding cancer and I had waited too long, was one of a handful of reasons I opted for surgical risk reduction.
Thus in October 2021, I elected for a prophylactic, sensation-preserving, double mastectomy with DIEP flap reconstruction. Due to my high risk for ovarian cancer as well, I am planning to have a total hysterectomy within the next 3 years, so I can prevent that too.
WORDS OF ENCOURAGEMENT FOR OTHERS
Be kind to yourself and give yourself grace as you would others going through an incredibly difficult journey. Your journey can and will take just as much a mental as a physical toll on you, so don’t be afraid to find your people, find your tribe, in person AND online. Some members of my tribe who helped me through the most emotionally/mentally tough parts of my journey were other previvors and survivors I first connected with via The Breasties’ social media and virtual meetups. And lastly, you know your body best and therefore are your own best advocate when it comes to healthcare; don’t forget that!
PHRASE/QUOTE THAT HAS SIGNIFICANT MEANING DURING YOUR JOURNEY
Scars are sexy
ONE TO THREE WORDS THAT DESCRIBE YOU
Quirky, passionate, strong-willed
HOW DID YOU FEEL WHEN YOU LEARNED ABOUT YOUR DIAGNOSIS?
Initially I think I didn’t process the reality of it all, but I wasn’t surprised because I had learned my paternal aunt also carried a BRCA 1 mutation (and we know now my dad does too). Once I went to that first breast surgical oncologist appointment and heard the staggeringly high chance of getting breast and ovarian cancer over my lifetime, I was extremely overwhelmed and anxious.
WHY DID YOU FIGHT?: Truthfully, I fought because not fighting was not an option. I could either continue increased screening measures indefinitely, which would cause my anxiety levels to stay perpetually high (I felt I’d be playing a game of Russian roulette waiting for breast cancer to find me), or take control of my health and reduce my risk of breast cancer from 80% to <2% through surgical measures.
THE KINDEST THING SOMEONE DID FOR YOU?: So many people have been so kind, including offering or downright just telling me they were bringing a meal, coming over to help the first few weeks after surgeries or for short visits to lift my spirits, and more. And I will forever be grateful for my mom jumping into caregiver mode for so long.
Amy Storms
OCCUPATION
Homemaker, Expert Couponer, Baker Extraordinaire
VOLUNTEER WORK
I use my mad couponing skills to continually stock the shelves of local pantries. I have donated, and still do, to the United Churches of Algiers Emergency Fund, Magnolia Community Services, the Algiers Point Free Lil Pantry, the Westbank Community Fridge, and the Algiers Community Fridge.
Participate in events to raise money that benefit YouNight Empowering Events, a sisterhood of support, offering year-round, empowering group activities to help women.
During my chemo treatments, I baked something yummy every week to take to the West Jeff Cancer Center to thank everyone for what they were doing for me and others like me.
I was a Cub Scout leader for 6 years and Popcorn Chair for 4 of them.
I started and oversaw a Recycling Program at my sons' elementary school.
Parent/Teacher Association vice-president for 3 years.
ACCOMPLISHMENTS/AWARDS
Recipient of Maize and Blue Distinguished Scholarship Award 1998
Cub Scout Den Leader award 2006, and Cub Scouter Award in 2008
Recycling program I started at my sons' elementary school 1 of 3 in Michigan to earn “Green School Certification”
Active blood donor for 36 years
A LITTLE ABOUT YOUR BREAST CANCER JOURNEY
When I first felt the lump, I thought there might be a chance it was just fluid, like my mother had had in the past. The more testing I got and the more time I had to feel the lump, the more I was convinced it was cancer. By the time my biopsy results came in, I had already accepted the diagnosis and was mentally prepared for the next step.
I underwent 16 rounds of chemo, 25 rounds of radiation, and 4 surgeries.
During this time, I lost my older brother to Multiple Myeloma and my sister-in-law (my older brother’s former wife) to Covid. Cancer took the first half of my youngest son’s senior year and Covid took the rest.
The first 4 chemo treatments were the worst. I had started to realize why some people choose not to fight. Looking back, I say to myself “that was only 2 months?” I made it through, just like I made it through 2 pregnancies. The memories are still there, but the pain is forgotten.
I compared each surgery to my c-sections. I figured they couldn’t be any worse, and I made it through both of those. I followed the doctor’s orders, took care of my body, and rested when I needed to.
My husband and my sons are the only family I had here. My mother was unable to come take care of me due to my brother’s cancer and the pandemic afterwards. My husband, Michael, went to nearly every appointment and treatment with me and made sure I was comfortable at home. He took over the cooking and cleaning duties and even bathed me on occasion. He never left my side. He was diagnosed with heart failure in November of 2022 and passed away this January. He got me through my toughest time only to leave me during his.
WORDS OF ENCOURAGEMENT FOR OTHERS
Don't overthink it, worrying doesn't change anything. Make a plan and execute it. I tell people I did not "survive" cancer, I defeated it.
PHRASE/QUOTE THAT HAS SIGNIFICANT MEANING DURING YOUR JOURNEY.
Whenever I would talk to my mom during my breast cancer journey, she would proclaim "You act like you're just going to the dentist". Well, there wasn't any use in complaining about it, I just had to do it.
ONE TO THREE WORDS THAT DESCRIBE YOU
Strong. Smart. Honest.
HOW DID YOU FEEL WHEN YOU LEARNED ABOUT YOUR DIAGNOSIS?
I was angry when I felt the lump. I was having a bad morning and yelled that this was the last thing I needed. By the time my biopsy results came back, I had already accepted that it was cancer. I was terrified because I didn't have health insurance. How was I going to pay for my treatment? How long would I have to wait to begin?
WHY DID YOU FIGHT?
There really wasn't a choice. I knew I had to purposely make myself sick in order to get better. I knew I was strong, so I knew I could do it. My boys were 21 and 17. I knew I wanted to be around to watch them graduate, get married, and possibly have children. I wasn't ready to leave my husband of 23 years either. We had been through every up and down possible during our marriage, and we would get through this one too.
THE KINDEST THING SOMEONE DID FOR YOU?
The kindest thing someone did for me was pay my medical deductible for the year, so I wouldn't have to worry about it.
Jo Ann Toomy
OCCUPATION
Insurance Agent (Retired)
VOLUNTEER WORK
Friends of the German American Cultural Center - Former Board Member
Hope Haven Advisory Committee - Former Board Chairman
Gretna Historical Society - Former Vice President
Founding Member of Gretna Farmer's Market & Current Board Member
Founding Member of Gretna Art Walk & Current Board Member
ACCOMPLISHMENTS/AWARDS
HOPE HAVEN CENTER - 1997 BEST of the WEST APPRECIATION AWARD
CATHOLIC CHARITIES- 2018 PACE SENIOR SERVICES AWARD
A LITTLE ABOUT YOUR BREAST CANCER JOURNEY
Unlike many others diagnosed with breast cancer, my journey has been a short one. My mammogram on October 26, 2022 looked a little different from the previous year's image. After several other tests it was suggested that I have a biopsy done just to make sure that it wasn't anything to be concerned about. On December 2, 2022 I received the news that I was not expecting - grade 1 infiltrating ductal carcinoma of the left breast. After meeting with the radiologist, oncologist & surgeon it was decided that a segmental excision was the best procedure rather than a total mastectomy. The surgery was performed on January 26, 2023. The tissue removed showed clear margins & thankfully that neither radiation nor chemotherapy would be required. My oncologist will be treating me with hormone therapy for 5-10 years. I feel truly blessed to have been treated by such a knowledgeable and supportive health care team. I can not thank them enough as well as my family & friends for their prayers & support.
WORDS OF ENCOURAGEMENT FOR OTHERS
The improved testing equipment & procedures that we have available today proves that cancer diagnosis does not have to feel like a death sentence as it once was. Make sure to have regular mammograms for the best outcome from the worst diagnosis.
PHRASE/QUOTE THAT HAS SIGNIFICANT MEANING DURING YOUR JOURNEY.
Early Detection is the Best Enemy of Cancer. Prayers & Modern medicine are Powerful.
ONE TO THREE WORDS THAT DESCRIBE YOU
Thankful beyond words.
HOW DID YOU FEEL WHEN YOU LEARNED ABOUT YOUR DIAGNOSIS?
Surprised & Frightened. I am so happy that I did not rely on the new medical guidelines of mammograms not being necessary over the age of 75 if there is no family history of breast cancer. At age 79, when my doctor asked if I wanted to schedule a mammogram because of the new guidelines I told him that as long as I had breasts I would continue to have testing done. Without that decision I'm sure I would have had a more difficult if any recovery.
WHY DID YOU FIGHT?
I have a husband, family & friends that I enjoy & I have a lot of things that I still hope to do.
THE KINDEST THING SOMEONE DID FOR YOU.
The friends & acquaintances sharing their experiences and support as well the prayers from everyone when they heard of my diagnosis were overwhelming.